An exploratory study of Alzheimer’s Disease & related disorders among Alaska Natives in rural and urban settings.

Project Leader:  Dr. Jordan Lewis | Southcentral Foundation

Abstract

Approximately 5.3 million people are estimated to have Alzheimer’s Disease and related disorders (ADRD) in the U.S.1 By 2025, that number will grow by 40 percent to 7.1 million. Research has primarily focused on a specific western, biomedical models of dementia (i.e., disease model) and the presupposed beliefs and supports needed based on this dominant paradigm. However, the current field of research recognizes that cultural frameworks and culturally based interventions for dementia care are critical to the success of care and supports for the older adult and their family. Recently, there has been an increase of literature focusing on defining dementia within a cultural context resulting in an understanding that older adults, families, and providers view dementia differently compared with the dominant medical paradigm. More research is needed to understand the specific explanatory models of dementia, especially for Alaska Natives. This qualitative, exploratory study will work collaboratively with Southcentral Foundation and rural health providers to explore the feasibility of conducting a study of this nature. Alaska is a very diverse state comprised of both rural and urban communities, with many Alaska Natives residing in both locations and having distinct understanding of dementia. Specifically, we will explore possible recruitment strategies (e.g., flyer, word of mouth, provider referral), inclusion and exclusion criteria, and compensation for participants. To our knowledge this is the first study to interview Alaska Native older adults at risk for dementia, their caregivers, and health care providers, and as such there are many unknowns to consider and challenges to resolve in order to successfully execute the study.